Friday, September 28, 2007

Miss Gloria Strauss - A new Neuroblastoma Angel

Anthony Strauss, 5, holds his sister Gloria's photo high as he rides on the shoulders of family friend Andrew Barfoot during Gloria's funeral procession Thursday. More than 2,000 relatives, friends, students and strangers attended the funeral and celebration for Gloria, 11, whose battle against cancer was documented in a Seattle Times series. Events were held in the gym at Kennedy High in Burien, where Gloria's dad is a teacher and coach.
© 2007 The Seattle Times Company

Doug Strauss is greeted by friends during the funeral for his daughter, Gloria, who died after a four-year battle with neuroblastoma.
© 2007 The Seattle Times Company

I found the two pictures on the Seattle Times news web site. A journalist of the Times has been writing about Gloria for the last four months and has about 12 stories in his series of articles. There are a couple pictures and slide shows of his time with her as well, which would bring tears to the coldest hearted person's eyes.

Here is a link to one of the stories and along the right there are the links to the rest of Jerry Brewer's time with this beautiful little girl.

Here is the YouTube Video as well...

Monday, September 24, 2007

The Loneliest Road Campaign

On September 10th 2007, five fathers from around the globe started on a grueling adventure in hopes of saving the lives of their children and others affected by a devastating pediatric cancer known as Neuroblastoma. This prominent pediatric cancer is not hereditary, a known byproduct of some industrial/ecological waste, it is merely unexplainable.

Standard treatment protocols around the globe offer little hope. Stage IV patients such as our children have a 20% survival rate. Innovations in immunological therapies have raised the bar however they do have complications. Recently it was brought to the attention of parents by the fields leading scientist's that a complimentary, far less symptomatic antibody could be manufactured, however the funding was unavailable. Depressed, angry, but excited for the possibility we asked how much would this cost? 2-3 million dollars! Ultimately this is the monetary value placed upon the lives of 150-300 children who could directly benefit from this antibody each year.

In hopes of making a difference, we parents are taking a stand!

What is the Loneliest Road? The loneliest road makes up part of our ride along Hwy 50 better known as the loneliest road in the United States. It is well off the beaten path and at times offers little evidence of any human life. Fittingly the name relates to the daily challenges, our families, and particularly our children's face in eyes of this devastating disease.

We will begin in Sacramento CA and collectively ride 3700 miles, 24 hours a day, 7 days a week to Washington DC where we will unite with other Neuroblastoma families, showing our strength in numbers ensuring social awareness is gained.

We are tirelessly committed to this challenge. Outside of our children’s hospital rooms we are training hard, day and night, whenever a free moment becomes available. Each rider will be equipped with GPS tracking devices to follow our progress and be keeping daily blogs concerning our ride. Our support staff is just as committed. Together we aim to cause a media buzz/frenzy, which will help gain the crucial philanthropic funding necessary for the development of the antibody. We beg for your help and your support. Please check back with us daily and spread the word. We invite you to be part of our children’s lives and our family’s adventures (please see our children’s individual websites which outline our daily struggles, routines and treatments).

Respectfully, The Five Fathers


San Francisco (Media Events)
Sacramento (Take US 50 from Sacramento to Reno)
Go North and pass to the east of South Lake Tahoe


Reno (Take US 50 from Reno to Salt Lake City)


Salt Lake City (Take Route 40 from Salt Lake City to Denver)


Denver (Take Route 36 from Denver to Kansas City)


Kansas City (Take Route 50 from Kansas City to St Louis)


St Louis (Take 50 to Route 150 into Louisville, KY)




Blacksburg, -Virginia Tech
Roanoke (Take Route 460 to Lynchburg)
Lynchburg (Take Route 29 to Charlottesville)
Charlottesville (Take Route 29 to Route 28 to Route 50 Arlington Road)


Here is the link to their blog site that is upated during their journey :

Wednesday, September 12, 2007

Help Us Make A Difference!

below is an email I received from another mom who's child has now hopefully beaten this horrible beast. Please read the email below and watch the you tube video and check out her families myspace. Spread the word to raise awareness!


Thank you for all your support and prayers for Lane through his battle with cancer. We think his battle may finally be over – yeah! We will continue to put updates on Lane’s web site as he undergoes future tests/scans, reaches milestones, etc.

Help us celebrate his life and so many other children that are or have battled cancer. September is Childhood Cancer Awareness Month. Watch this powerful video at and choose to make a difference – it’s as simple as wearing a gold ribbon and telling people what it signifies. For more ideas on how to help read “Lane’s Story: a story of struggle, hope and transformation”, which is saved as an attachment to this email. We also have a MySpace page ( that is dedicated to raising awareness. Chili’s restaurant has committed to this cause. Take your family to Chili’s on Sept. 24. The restaurant is donating 100% of its profits from this day to St. Jude’s hospital for childhood cancer research. Information, childhood cancer statistics or a sample letter to write your government officials for increased childhood cancer research, can be found at

Please forward this email to all your friends and family. Help us spread the word about childhood cancer; it could save lives. Don't wait until tomorrow, make a difference today!

On behalf of Lane and other children with cancer, thank you for your efforts!

Celebrate life,

The Cunninghams – Todd, Kara, Lakin and Lane

Tuesday, September 11, 2007

Ryan's Journey

View this montage created at One True Media
Ryan's Journey

Danielle, the mother of Ryan McCormick, a SUPERMAN himself, created this slide show. If you have the time, please watch it. It's VERY moving! Here is the link to his CaringBridge site :

(please see my disclaimer above about my postings this month)

Thursday, September 06, 2007

September is Childhood Cancer Awareness Month

I just needed to share this story I found online by doing a 'Google' search on the term "Childhood Cancer Awareness Month"

Here is the link to the story :

When September rolls around, I look like any other haggled parent standing in the checkout with three kids. The shopping cart is filled with packs of pencils, note paper, crayons, markers and tissues.

"Why do we need to buy tissues for school?" my kindergartener asked last year.

I pictured a whole class of five-year-olds with runny noses and was tempted to reply, "So kids won't use their sleeves." But I chose the logical, "For when your nose is runny."

My neighbor claimed it would be a busy year when she found out I'd have one in kindergarten, one in first grade and one in middle school. But not busy enough, I thought, and again resisted the urge to let her know that I was wondering what my fifth-grader would be needing for school this year.

My fifth-grader, Daniel, never passed fourth grade. Or third, or even first. He didn't get a school supply list. Instead he got a kit from the hospital with syringes and bandages, all very sterile.

On Memorial Day Weekend, 1996, Daniel was three and diagnosed with Neuroblastoma. After eight months of treatments, surgeries, prayers and hope, this bald-headed kid, who acknowledged he was a “Brave Cookie,” was ready to be a cancer survivor. But a staph infection entered his weakened body and we had to kiss him good-bye.

September-- now meaning for me, not only back to school, but Childhood Cancer Awareness Month-- has rolled around again and as I stand in line with my kids, I know why the supply lists include tissues.

Just the other day while joining other parents and children in the “shopping for school supplies frenzy,” a woman noticed the gold ribbon pinned to my t-shirt. “What’s gold for?” she asked. “I know that pink is for breast cancer.”

“Children,” I said. “Gold because our children are golden to us.”

I half expected her to show shock or horror, being one of the thousands who refuses to believe that cancer is the number one illness among children. One of those who has no idea that each year one in every 330 kids will be diagnosed with cancer before age 19.

I was ready for her to walk away from me down the aisle. Instead she mouthed the words, “Did a child of yours…?”

“Yes,” I said. “A son who would be ten now. He didn’t survive.”

Her eyes showed tears, causing mine to fill. Then this woman—a stranger--touched my arm. “I am so sorry.” She smiled at my other three children. “They are beautiful. I’m sure your son was, too.”

If you see a mother wearing a gold ribbon on her shirt--the symbol of childhood cancer awareness---please ask her about the ribbon. The opportunity to talk will help with her healing and give you new wisdom. Be aware that she may cry. Feel free to hand her a tissue. Although she has done it before, she probably shouldn't be using her sleeve.

(Written in 2002)

Alice J. Wisler lives and writes in Durham, NC. She is the author of "Down the Cereal Aisle" and "Slices of Sunlight," both cookbooks of memories. Her free grief e-zine, Tributes, goes out to over 800 subscribers each month. Visit her web site:

Learn more how you can help childhood cancer research: Visit The National Childhood Cancer Foundation (NCCF)

Article Source:

Tuesday, September 04, 2007

Ensenada 2007

Here are some pictures from our trip this past weekend in Ensenada. That is why we have been MIA.... =)